http://leilani.blogs.gabrielslife.org Another gabrielslife.org weblog Sat, 01 Dec 2007 17:04:25 +0000 http://backend.userland.com/rss092 en Mellencamp lends star power to Winnipeg spina bifida group American rocker suffered from disease as a child CBC News John Mellencamp, who was born with spina bifida, is now the spokesman for the Winnipeg chapter of the Spina Bifida and Hydrocephalus Association of Canada. The well-known rocker was in and out of hospital ... http://leilani.blogs.gabrielslife.org/2007/12/01/john-mellencamp-new-spokesman-for-canadian-hydrocephalus-spina-bifida-group/ The Hydrocepalus Association is looking for photos to include on its new website. Please use the following link to submit your photos. Thank you. http://hydroassoc.12hna.com/flickr http://leilani.blogs.gabrielslife.org/2007/11/26/we-need-your-photos/ First sentence of his book: I was born with water on the brain. Seattle's Alexie wins the National Book Award By Mary Ann Gwinn Seattle Times book editor   PREV 1 of 3 NEXT   SETH WENIG / AP Sherman Alexie accepts the National Book Award for Young People's Literature for his book ... http://leilani.blogs.gabrielslife.org/2007/11/15/sherman-alexie-wins-national-book-award/ Today we launch an experiment in social networking. We are excited and a little apprehensive, kind of like throwing a party and not being too sure who will come. This is the first social networking site that focuses on a medical condition. The first time a community dealing with a ... http://leilani.blogs.gabrielslife.org/2007/10/17/gabriels-life-goes-live/ Had a meeting today to talk about SalesForce integration for Gabriel's Life. We need to be able to verify membership in the Hydrocephalus Association for people to create stories or blogs on Gabriel's Life. The process is overwhelmingly complicated and I understand nearly none of it. The org chart to ... http://leilani.blogs.gabrielslife.org/2007/08/01/integration/ I share an office with my boss, David LaPlante. Most of the time this works out well. He is gone this week/month leaving me a quite space to write Gabriel's story. He probably wouldn't mind, but I am glad he is not here to see my crying while I work ... http://leilani.blogs.gabrielslife.org/2007/07/13/office-space/ Today I started calling people to talk to them about participating in Gabriel's Life. I had been dreading these calls, not sure I would be up to the task of telling my story and hearing theirs. As happens most of the time, what I was dreading was totally off base. I ... http://leilani.blogs.gabrielslife.org/2007/06/15/too-many-in-the-er/ TJ Crawford, Josh Kenzer and I flew down to San Jose to meet with folks and talk about the hydrocephalus project. We meet Pam Wells from Lucile Packard Children's Hospital and Dory Kranz from the Hydrocephalus Association. We had lunch at a nice restaurant, so glad we didn't meet at ... http://leilani.blogs.gabrielslife.org/2006/07/28/meet-with-stanford/