Work in Progress

Gabriel’s Life Goes Live!

Today we launch an experiment in social networking. We are excited and a little apprehensive, kind of like throwing a party and not being too sure who will come. This is the first social networking site that focuses on a medical condition. The first time a community dealing with a specific medical condition has been encouraged to reach out to each other and been given the tools to do it.

There are concerns and there have been challenges. Will people want to talk about their experiences, especially since it involves their health? What if only crazy people participate and the content is inappropriate? What if all of the stories are scary and terrible? We don’t know what will happen. But sharing stories and experiences has been happening throughout history and it seems like a good idea.

Guess the only way to find out what will happen is to get this party started!

3 Comments »

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1. Leilani,
   Just wanted to leave you a quick note - congratulations on this amazing experiment. Seems to be working!
   Please let me know of anything I can do to help. Hope to see you soon.
   Sterling

   Comment by sterling doak — November 7, 2007 #

2. Leilani - I would love to join in on your party - count me in! I believe this is going to be a truly wonderful opportunity for thousands and thousands of people who need to know they are not alone out there. We are all part of an amazing community who truly care about each other. Let the party begin!

   Pip

   Comment by Pip — November 8, 2007 #

3. Leilani,

   This is an amazing tribute and a wonderful website. Congratulations! I’m so proud of what you are doing and amazed by your capacity to change pain and sadness into something so beautiful and meaningful. I wish you all success with this project. It has an opportunity to make a profound difference in people’s lives.

   I’ll be watching and reading (and I guess I’ll keep the kleenex nearby).

   Love,
   Kish

   Comment by Kish Enstice — November 10, 2007 #

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